Parents & families

worries

When your child is diagnosed with kidney disease the world can seem a confusing and frightening place. At a time when you may already be feeling tired and in shock you have to try to make sense of lots of information, interact with a team of professionals, look after your child, have time for your other children and still deal with a whole range of commitments which are part of life, such as work and finances.

It is important to find the information you need about your child’s condition but children are affected in different ways even though they have the same condition.

The hospital team are the best people to give you advice as they know exactly what condition your child has and how it is likely to affect them.

You can find more information on the hospital team here

Visit the Kidney information page for lots more information on-line

As well as finding information about your child's kidney disease, parents tell us they need to access a wider range of information and advice.

We have put together some practical and emotional resources for parents/carers of children with kidney disease here:

Parents & families

Help! My child has kidney disease

Finding the information you need

Resources for parents & carers